Telemedicine, telecare, and mobile health apps have recently gained momentum, driven by the COVID-19 pandemic and novel healthcare challenges. When preparing content on emerging technologies, it is fundamental to understand their context, impact on the healthcare ecosystem, benefits, and threats.
Digital health or e-health?
The term “digital health” describes the digital solutions aiming to improve individuals’ health and well-being, decision-making, effectiveness, access to information, communication standards, management, and policy-making. Following the Healthcare Information and Management Systems Society (HIMSS) definition (updated in March 2020), “digital health connects and empowers people and populations to manage health and wellness, augmented by accessible and supportive provider teams working within flexible, integrated, interoperable and digitally-enabled care environments that strategically leverage digital tools, technologies and services to transform care delivery.”
Digital health emerged from “health IT” (used mostly for electronic health records, IT systems in the hospitals) and “e-health” (defined as “the use of information and communications technology in support of health and health-related fields”). Hence, digital health doesn’t focus on technology anymore but on transforming healthcare using digital technologies.
The place of digital health in the current and future care landscape has been comprehensively explained in “Digital Health: A Framework for Healthcare Transformation” published by HIMSS.
Why is digital health important now?
Healthcare is facing enormous challenges: aging societies, a rising burden of non-communicable diseases (NCDs), health inequalities, medical errors, growing patient expectations, a shortage of healthcare professionals, the inefficient use of resources, and global pandemics like COVID-19. As a result, healthcare spending and the gap between the demand and supply of healthcare services are rising continuously.
Digital health technologies are seen as enablers for more sustainable, efficient, personalized, patient-centered, and precise healthcare.
In recent years, World Health Organization (WHO) recognized the potential of digital health in supporting the achievement of the Sustainable Development Goals and Universal Health Coverage (UHC). To enable countries worldwide to plan, adopt, and benefit from technologies, the WHO has released recommendations on digital interventions for health system strengthening and a global strategy on digital health 2020–2050.
Identifying the benefits of new technologies
Digital health is hugely popular. Some argue it will help to address the abovementioned healthcare challenges. Although many scientific papers have been published recently on the topic, the positive impact of digital solutions for disease prevention, quality of care, and the treatment of some diseases is still understudied. Enthusiasm toward digital health technologies is also fueled by startups developing innovative solutions.
Especially when reporting on recent innovations, a double-check and verification of scientific facts is a must. The case study of a medical startup, Theranos, illustrates that relying on data available on the Internet might be insufficient (a revolutionary blood-testing technology turned to be a fraud). Since digital health is a relatively new field, finding a reliable source requires in-depth research.
Papers exploring the benefits of digital applications in specific medical fields might be found in high-profile scientific journals (Nature, Science, The Lancet, JAMA, The BMJ). For journalistic objectivity, potential hazards – if they exist – should also be addressed. The most common ones are data privacy, unethical data processing, and cybersecurity threats.
Understanding the ecosystem
When writing about a particular technology, it is advisable to consider its impact on all healthcare system levels to capture its opportunities and limitations. A helpful tool is a healthcare stack analysis that includes: technology (what added-value does it offer?), the user (the target group, individuals or organizations), workflow (how does it fit the present procedures and organization structures?), and the healthcare system. The implementation of technology must consider the regulatory framework (national and international law and unwritten rules), healthcare standards, reimbursement system, existing infrastructure, culture, and trust toward new technologies. Every healthcare system is a complex and regulated ecosystem with many stakeholders representing different interests.
Distinguishing between well-being and medical technologies
At the beginning of 2021, there were over 400,000 health apps on the market. Health and well-being-related features are embedded in smartphones (e.g. activity and sleep tracking) and wearable technologies (e.g. smartwatches, fitness bands). Miniaturized sensors measure health parameters and monitor behavior to assist the users in navigating their own health. A few of them are already medical devices (recognized by the CE mark in Europe, FDA clearance in the USA, approval by CFDA in China), but most of them are well-being solutions. A rising number of digital technologies include Artificial Intelligence and Machine Learning algorithms. Their application remains still unregulated, but, for example, they should follow ethical guidelines that are vital for gaining trust.
Some solutions, like telecare systems, do not require medical certifications. However, they should be consistent with data protection regulations (e.g. General Data Protection Regulation GDPR in Europe and The Health Insurance Portability and Accountability Act HIPAA in the USA). On the contrary, telemedicine solutions must be compliant with relevant regulations if they include measurement of health parameters (blood pressure, pulse, body temperature).
Data sources and local perspective
There are many reliable international knowledge sources regarding digital health, with Lancet Digital Health and HIMSS media at the forefront. Due to different healthcare system models (private or public health insurance), journalists should also verify if the technology can be deployed in a particular national and regional ecosystem. One guiding principle should not be forgotten: it is the patient who must benefit most from the digital solutions. Therefore their opinions should also be included in the media coverage.
Storytelling in digital health
The biggest challenge today is not developing technology but its adoption in the healthcare market. It requires new digital skills of healthcare professionals and citizens, reinvented reimbursement models, and – most of all – cultural change or change management toward prevention-oriented and personalized healthcare. Finally, in digitalization, the essential part is a human factor: trust toward new technologies.
- Avoid generalized benefits but focus on what the technology can deliver;
- Minimize use of the buzz words like “democratization of healthcare,” “digital revolution,” and “disruptive technologies”;
- Do not stereotype or bring up generalized threats, for example, concerns about data safety if there are no convincing arguments;
- Examine the impact of the technology on every layer of healthcare systems and different stakeholders (patient, healthcare professionals);
- Focus on the transformational power of the solution, not the solution itself;
- Check if the technology is compliant with the regulatory framework, data protection regulations, and local healthcare system goals and challenges;
- Check if the solution does not increase healthcare inequalities (price, availability for different patient groups);
- Follow the “patients included” principle. When collecting opinions, ask the patients or patients’ representatives about their perspectives;
- Highlight the problem in healthcare that the digital solution addresses;
- Be aware of vanity metrics that describe the uptake of technologies (number of downloads, users, etc.) which can be misleading;
- Raise awareness toward challenges like interoperability, access to technologies, digital literacy skills, and infrastructure.
This guidelines were developed for the World Association of News Publishers as a part of the Science In The Newsroom initiative.
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Reblogged this on Science is not glamorous and commented:
Not mine, but a very good sum-up of digital health and its implications of reporting it as the next “miraculous drug” to solve all problems